InterStim Update #1 | Jenngem

InterStim Update #1

in , , , by JLynnCorter, 10/27/2018
If you've been following this blog for a while now, you'll know that I've been in chronic pain for years. The pain has caused me to pass out, and as a result, I have had my license taken away. I'm a mom who basically has to rely on her own mom (when husband is at work) to shuttle myself and my son around. Yep, it's kind of a crap situation to be in.

For years, doctors went back and forth, as to whether or not I actually had endometriosis. One said I did, another said I didn't. Earlier this year, I began seeing a doctor who agreed to do a surgery to see once and for all if I did have endometriosis. He at least did the right thing, and biopsied the tissue, instead of eyeing it up and judging it that way. Biopsy came back positive for endometriosis. But, I digress.

I proceeded to tell him about my chronic left-side pelvic pain, that's been there since Syrus was born. I even passed out in the office once, but that's a tale I'll regale you with another time. Point is, this guy, this doctor, must actually have human emotions. Because let me tell you, he tried everything for me. He even prescribed me pain medication during a particularly bad spell. I've come to his office crying. One time in his office, he thought of a possible out there solution. Sacral Neuromodulation. It's a device, also known as InterStim. It stimulates certain nerves, as you can tell from the link. He thought that maybe, just maybe that it would be worth a shot. At this point, why the hell not?

It's a two-step process, though. It's about a week trial, with the stimulators in my back, stimulating the nerves, with me controlling it via Bluetooth remotes. This is to see if the stimulators will actually work for me. Boy-howdy, though. The first surgery, I had to be awake for as they shoved needles into my back and jiggle them around to find the right nerves. But then the table I was on didn't work. So he had to take the needles out. Move me to a different operating table and re-insert the needles. I will admit that I totally bawled like a baby in the operating room. But I have my temporary stimulators in. I did it. #BadAssStatus

And GUESS THE HELL WHAT? I have taken barely a thing for pain. Sure, a Tylenol here and there for some post surgery pain or a headache, but that's it. I do not feel my left side pain. Can you believe it? After seven years, seven straight years of hell, day in and day out? I give my final decision as to whether I want the semi-permanent InterStim batteries (they last 5 years) put in underneath my skin on Wednesday (Halloween!), and my answer is obviously going to be a resounding HELL YES. My second surgery to implant the batteries is already scheduled for Friday, November 2nd.

Can you imagine? My life, no more passing out? No more curled up on the couch crying?
Playing with my son? Getting involved in his school activities? BEING A MOM?

Now, obviously, this has nothing to do with endometriosis. That will always be there. It will grow. I will likely have to get surgeries every couple of years. At this point it's wrapped around my left ureter, and I have to see what to do about that. He also had found it attached my bowel to my abdominal wall. So, we'll see what happens with that. But no one could ever pin down exactly what the left-side pelvic pain was. Still can't, but at least I have the option of no more pain. I can't wait to see what the future holds.

SHARE 0 comments

Add your comment